Here is information on Episodic Ataxia from CINCH (Consortium for the clinical investigations of Channelopathies) from UCLA and the Medical University of Rochester New York. Also Information on Episodic Ataxia from the National Ataxia Foundation. I have been the patient advocate for CINCH for the last several years. CINCH has been involved in the study of three rare disorders including episodic ataxia. Research is being conducted on Episodic Ataxia and currently a few locations are in the process of performing clinical trials.

I have travelled to Los Angeles once and New York twice to give the patient's perspective on Episodic Ataxia. I have translated the information in Spanish. The following is the English information with my Spanish translations.

Translations I have just finished for the National Ataxia Foundation.

English
http://www.ataxia.org/pdf/Episodic%20Updated%202007.pdf

Spanish
http://www.ataxia.org/pdf/Episodic_Spanish2009.pdf

Spanish
http://www.ataxia.org/pdf/Episodic_Ataxia_Registry-Spanish.pdf

Translations done for UCLA and the Medical University of Rochester, New York

English
http://rarediseasesnetwork.epi.usf.edu/cinch/index.htm

Spanish
http://rarediseasesnetwork.epi.usf.edu/cinch/espanol/
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